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Usher syndrome is a rare genetic disease that affects approximately one in 30000 people. It is characterized by combined ... See My Life”: an international multidisciplinary research project to assess the quality of life of children with visual impairment due ...
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History
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ERN-EYE webinar - Retinoblastoma
Replay ERN-EYE and Endo-ERN joint webinar on Blepharophimosis syndrome (BPES)
Watch now the best moments of the ERN-EYE General Annual Meeting 2026!
Replay ERN-EYE webinar on CRISPR and RNA / ASO therapies
ERN Eye case study: Rare eye disease ontology creation and editing
ern videoclip
Usher Syndrome: Guidance for healthcare providers - Video about Do’s and Don’ts!
SEEMYLIFE – RESEARCH PROJECT
Presentation of Pr Dollfus at the ARVO meeting in June
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Last Updated: June 12, 2026
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